My CML Log
June 2002
June 2010
Laura Dedering
It all began in December of 2003
Below are the CURRENT updates
Hi,
Thanks to all for calling and for writing, for good wishes and for praying.
In order to pass along accurate info about what is going on, and to reduce the number of
times I have to repeat the story by phone or by email, I felt it would be a good idea to
set up a website journal. Anytime anyone is interested in seeing how things are
going, please just drop by this page for updates.
THE LATEST NEWS IS AT THE TOP.
Warmest regards,
Laura
| "Be kinder than necessary, for everyone you meet is fighting some kind of battle." ~ When you were born you were crying and everyone around you was smiling. Live your life so that when you die, You're the one who is smiling and everyone around you is crying. |
2003 Info
2004 Info
2005/2006 Info
2007/2008 Info
2009-Current
FMI:
http://www.nationalcmlsociety.org/
201
5Hi All,
Both of my 6 month blood test results show I am still
at 0.000 Philadelphia Chromosomes out of 100,000 tested.
That means I’m still in remission at the 12 year Anniversary
milestone! Diagnosed Dec.
2003
Thank you all for 12 years of love and support.
2014 -
Hi All,
I just got my 6 month blood test results back. Still
at 0.000 Philadelphia Chromosomes out of 100,000 tested.
That means I’m still in remission at the 11 year Anniversary
milestone! Diagnosed Dec.
2003
Thank you all for 11 years of love and support.
2013 - I am still in total remission
2012 - December 27 - Again we have received good news. The PCR study shows 0.000 Philly Chromosomes out of 100,000 cells tested. So I am still in total remission and I have just passed the 9 year anniversary of my diagnosis with CML.
2011
- As of Dec 1, I
have just passed the 8 year anniversary of my diagnosis with CML.
November 02 - Again we have received good news.
The PCR study shows
0.000 Philly Chromosomes out of 100,000 cells tested.
So I am still in total
remission.
2010 -
-
November 17 - Again we have received good news. The PCR study shows 0.000 Philly Chromosomes out of 100,000 cells tested. So I am still in total remission. Life is good!
-
June 16 - We have received good news. ALL MY BLOOD CAME BACK Good. The PCR study shows 0.000 Philly Chromosomes out of 100,000 cells tested.
-
February 1 - Again we have received good news.
I just received the results, ALL MY BLOOD CAME BACK PERFECT.
AND, no more side effects with the change to Sprycel. What a huge difference in my quality of life!
By the way, the Bubble Massage Tub is getting lots of use.
2009
-
Nov. 3 - After almost 6 years of debilitating symptoms from Gleevec, I went to see Dr. G at Hackensack for a consultation about medication. We decided to give a newer drug named SPRYCEL a try. Wish me luck.
August 19 - Once
again we have received good news.
ALL MY BLOOD CAME BACK PERFECT.
The PCR/ABL (9;22) Fusion
Test result was 0.000 !
They found ZERO Philly chromosomes out of the 100,000
cells tested. I am still in total remission!!
Reds, Whites and
Platelets were all within normal range, as well. Woo Hoo!
And the new bubble tub has been a blessing for my hip and back.
June - Off
topic, but I have been struggling with severe pain in my back and right leg.
After 3 years of unsuccessfully treating it as a back problem, it turns out
that the pain is originating from my dysplastic right hip. After several
tests, including MRI's, x-rays, etc. it was decided to do a fluoroscopically
directed injection of cortisone directly into my right hip joint. Major
OUCH!
In addition to the injection were several treatments of acupuncture, cupping
and deep therapeutic massage therapy. The good news is I am so very much
better. The question is how long it will last...
In the mean time, it has become apparent that my body is desperately in need
of hydrotherapy. When we lived in Basking Ridge, we had a whirlpool tub
installed that had been critical to my ability to function. After three
years in this new house without the benefits of my tub, it is evident that I
am not going to be able to function without my 2 hour soaks every other night.
Currently, my master bathroom is gutted and a new Kohler Bubble Massage Tub is
sitting in the garage awaiting installation. Hope it helps...
April 20 -
Again we have received good news.
I just received the
results, ALL MY BLOOD CAME BACK PERFECT.
I
wish you all Happiness and Good Health!
Laura
Last modified: August 10, 2016
| Life is not a journey to the grave with the intention of arriving safely in a pretty, well-preserved body, but rather to skid in broadside, thoroughly used up, totally worn out, and loudly proclaiming, "WOW--What a Ride!" See Erma Bombeck |
Anyone who wants to look up more info can watch videos
about the disease and treatment at the following site:
http://aml.healthology.com/focus_index.asp?b=aml&f=leukemia
A high-speed internet connection may be required to view the videos
presented here.
Good CML Info http://www.cmlsupport.blogspot.com/
Medscape - They have an on-line
doctor training session on CML and the uses of imatinib (Gleevec) and the other
2 newer CML agents and issues with toxicity. I spent about 30 minutes
going through it. Definitely worth the time although
a little might be over your head - this is training for doctors so quite
in-depth.
http://broadcaster.medpagetoday.com/t?r=2&c=2135&l=15&ctl=EAC0:9EB8787103E6D9A2C7A931FDCF15D39F
Another CML patient's Journal: Diary.asp
If you want to contact me please write to lauradedering@ptd.net